The Moment Home Readings Buy the Book About The Moments

HLA-B27

The blood tests came back positive

My doctor called and said the blood tests came back positive. He was sending me to a Rheumatologist. He said I had a genetic marker that is "strongly associated with Ankylosying Spondylitis" and I needed a specialist.

I was unprepared for my body betraying me. I slowly backed out of weekly hikes with girlfriends because I walked slowly and in pain, I avoided the stairs to quiet the screaming of my hips and knees, my beloved yard become someone else's responsibility to weed and tend, and my house was turned over to a housekeeper. I talked with my husband incessantly about medications and options that would take away my diagnosis and let me return to my former self.

Denial is a strong thing and I spent thousands of dollars on massage, acupuncture, naturopaths, physical therapy, medications and doctors desperately searching for a cure. There is no cure.

Eventually I became bored with myself and my constant focus on my body and slowly came to the realization I did not want my life be controlled by this disease. Some days that is easier than others. My life will never be the same. I have a new normal. One phone call shifted my world leaving a message that it would never be the same again. While "AS" has taken a lot from me, it still left me a life. A life to live and love in. I choose that.

Comments

No comments yet, why not leave one of your own?



Leave a Comment or Share Your Story

Please Sign In. Only community members can comment.

The Moment Book

Moments from the SMITH Community

Day One All small children are weathermen. They may not know much but they know good and bad, scary and safe, and when they're checking the weather of their world the sky they look into is their parent's face. If you're the parent, no matter what kind of tornado is coming, it's your job to act like everything is okay. The day of our appointment, nothing was okay, but I was …
Line Break
Canter the dog I am not a dog person. Why? Because sometimes I forget to get myself dinner. Because I never walk myself daily. Because I don’t play catch with myself and because I won’t change all that for a dog. That was my opinion anyhow before Canter came to stay. Don’t think I would have let him in easy--he is a golden retriever, which is to say he …
Line Break
Marlo Thomas Is An Actress In 1974 my family loved watching Marlo Thomas on her TV show, That Girl. My mother would always refer to her as 'that darling Marlo Thomas' or by her longer name, 'that darling Marlo Thomas, I just love her'. We also loved I Dream Of Jeannie and Bewitched. Jeannie had a master who stoppered her into her bottle when she was bad and Samantha wasn't allowed to be her …
Line Break
Read More Community Moments →
 
SMITH Magazine

SMITH Magazine is a home for storytelling.
We believe everyone has a story, and everyone
should have a place to tell it.
We're the creators and home of the
Six-Word Memoir® project.